NDIS Support for Kabuki Syndrome in Port Macquarie, NSW

Yes — NDIS support for Kabuki Syndrome is available in Port Macquarie, NSW. Around 28 verified providers serve the Mid North Coast area across the supports commonly funded for Kabuki Syndrome, in person or via telehealth.

Kabuki Syndrome is a rare multisystem genetic disorder caused primarily by mutations in the KMT2D gene (formerly MLL4) in approximately 75% of cases, or the KDM6A gene in a smaller proportion. It is characterised by five principal features: distinctive facial features (long palpebral fissures,…

Kabuki Syndrome support in Port Macquarie — FAQs

How do I find NDIS providers for Kabuki Syndrome in Port Macquarie?
Novida lists verified providers serving Port Macquarie and the Mid North Coast area across the supports commonly funded for Kabuki Syndrome. Filter by availability and registration status, then enquire directly — around 28 NDIS providers operate locally.
Is Kabuki Syndrome covered by the NDIS in NSW?
Yes — Kabuki Syndrome can qualify for NDIS support. Kabuki Syndrome is on the NDIA’s List A, so the disability requirement is treated as met — the focus is confirming the diagnosis. Funding covers reasonable and necessary supports across daily living, therapy, social participation and capacity building.
Are there Kabuki Syndrome specialists near Port Macquarie?
NSW-based providers are shown first for Port Macquarie, and telehealth widens the specialist pool well beyond Mid North Coast for therapy and coordination supports at the same NDIS rates.