NDIS Support for Phelan-McDermid Syndrome in Hornsby, NSW

Yes — NDIS support for Phelan-McDermid Syndrome is available in Hornsby, NSW. Around 44 verified providers serve the Northern Sydney area across the supports commonly funded for PMS, in person or via telehealth.

Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3 plays a critical role in synapse formation in the brain, and its loss is one of…

PMS support in Hornsby — FAQs

How do I find NDIS providers for PMS in Hornsby?
Novida lists verified providers serving Hornsby and the Northern Sydney area across the supports commonly funded for PMS. Filter by availability and registration status, then enquire directly — around 44 NDIS providers operate locally.
Is PMS covered by the NDIS in NSW?
Yes — Phelan-McDermid Syndrome can qualify for NDIS support. PMS is on the NDIA’s List A, so the disability requirement is treated as met — the focus is confirming the diagnosis. Funding covers reasonable and necessary supports across daily living, therapy, social participation and capacity building.
Are there PMS specialists near Hornsby?
NSW-based providers are shown first for Hornsby, and telehealth widens the specialist pool well beyond Northern Sydney for therapy and coordination supports at the same NDIS rates.