NDIS Support for Phelan-McDermid Syndrome in Katherine, NT

Yes — NDIS support for Phelan-McDermid Syndrome is available in Katherine, NT. Around 10 verified providers serve the Katherine Region NT area across the supports commonly funded for PMS, in person or via telehealth.

Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3 plays a critical role in synapse formation in the brain, and its loss is one of…

PMS support in Katherine — FAQs

How do I find NDIS providers for PMS in Katherine?
Novida lists verified providers serving Katherine and the Katherine Region NT area across the supports commonly funded for PMS. Filter by availability and registration status, then enquire directly — around 10 NDIS providers operate locally.
Is PMS covered by the NDIS in NT?
Yes — Phelan-McDermid Syndrome can qualify for NDIS support. PMS is on the NDIA’s List A, so the disability requirement is treated as met — the focus is confirming the diagnosis. Funding covers reasonable and necessary supports across daily living, therapy, social participation and capacity building.
Are there PMS specialists near Katherine?
NT-based providers are shown first for Katherine, and telehealth widens the specialist pool well beyond Katherine Region NT for therapy and coordination supports at the same NDIS rates.