NDIS Support for Phelan-McDermid Syndrome in Nowra, NSW

Yes — NDIS support for Phelan-McDermid Syndrome is available in Nowra, NSW. Around 21 verified providers serve the Shoalhaven area across the supports commonly funded for PMS, in person or via telehealth.

Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3 plays a critical role in synapse formation in the brain, and its loss is one of…

PMS support in Nowra — FAQs

How do I find NDIS providers for PMS in Nowra?
Novida lists verified providers serving Nowra and the Shoalhaven area across the supports commonly funded for PMS. Filter by availability and registration status, then enquire directly — around 21 NDIS providers operate locally.
Is PMS covered by the NDIS in NSW?
Yes — Phelan-McDermid Syndrome can qualify for NDIS support. PMS is on the NDIA’s List A, so the disability requirement is treated as met — the focus is confirming the diagnosis. Funding covers reasonable and necessary supports across daily living, therapy, social participation and capacity building.
Are there PMS specialists near Nowra?
NSW-based providers are shown first for Nowra, and telehealth widens the specialist pool well beyond Shoalhaven for therapy and coordination supports at the same NDIS rates.