CHARGE Syndrome — NDIS Support
Yes — CHARGE Syndrome can qualify for NDIS support. CHARGE Syndrome is on the NDIA’s List A, so the disability requirement is treated as met — the focus is confirming the diagnosis. Funding covers reasonable and necessary supports across daily living, therapy, social participation and capacity building.
CHARGE Syndrome is a complex multisystem condition caused primarily by mutations in the CHD7 gene. The acronym CHARGE reflects the hallmark features: Coloboma (eye malformation), Heart defects, Atresia of the choanae (blockage of nasal passages), growth Retardation, Genital abnormalities, and Ear…
CHARGE Syndrome & the NDIS FAQs
- Is CHARGE Syndrome automatically eligible for NDIS?
- Yes. CHARGE Syndrome is a List A condition and is likely to meet NDIS disability requirements automatically. A clinical diagnosis from a geneticist — typically confirmed by CHD7 genetic testing — is required with the Access Request. Given the complexity and high support needs, NDIS plans for CHARGE Syndrome are…
- What is deafblindness and how does it differ from being deaf and blind separately?
- Deafblindness is a unique and distinct disability. When both hearing and vision are impaired — even if neither is completely absent — the compound sensory deprivation creates specific challenges to communication, orientation, mobility and learning that are qualitatively different from deafness or blindness alone.…
- What communication methods are used for CHARGE Syndrome?
- Communication methods for people with CHARGE Syndrome must be individualised based on their specific vision, hearing, motor and cognitive profile. Options include: tactile sign language (hands-on signing), object of reference systems (using real objects to represent activities and choices), Braille, Tadoma…
- What medical specialists are involved in CHARGE Syndrome management?
- CHARGE Syndrome typically requires a large team of specialists: paediatric cardiologist (heart defects), ENT (ear and choanal atresia), ophthalmologist (coloboma, vision), audiologist (hearing), gastroenterology (feeding difficulties), endocrinology (growth and hormonal issues), and neurologist (brain and developmental…
- How can NDIS support the family of a child with CHARGE Syndrome?
- NDIS can fund significant support for the individual with CHARGE Syndrome — including therapy, equipment, support workers and respite. Families can access Short Term Accommodation (respite) through the participant's NDIS plan. Carer Gateway (1800 422 737) provides additional respite, counselling and practical support…
CHARGE Syndrome & the NDIS — practical guides
- Applying for the NDIS with CHARGE Syndrome
- Assistive Technology for CHARGE Syndrome
- NDIS Funding & Budget for CHARGE Syndrome
- Therapy & Allied Health for CHARGE Syndrome
- Finding & Managing Support Workers for CHARGE Syndrome
Related conditions
- Cri du Chat Syndrome and the NDIS
- Kabuki Syndrome and the NDIS
- Costello Syndrome and the NDIS
- Klinefelter Syndrome and the NDIS
- Phenylketonuria (PKU) and the NDIS
- Neurofibromatosis and the NDIS
- Acquired Brain Injury and the NDIS
- Cerebral Palsy and the NDIS
- Epilepsy and the NDIS
- Multiple Sclerosis and the NDIS
Sources
Reviewed by the Novida editorial team · last reviewed 2026-07-12. General information only — not medical advice.