Assistive Technology for Cornelia de Lange Syndrome
The assistive technology and equipment the NDIS funds for Cornelia de Lange Syndrome, how the AT process works, and how to get it into your plan.
Assistive technology (AT) — from simple aids to powered equipment — helps many people with Cornelia de Lange Syndrome do things more safely and independently. This guide explains the AT that can help, how the NDIS funds it, and how to get it into your plan.
Understanding Cornelia de Lange Syndrome and assistive technology
Cornelia de Lange Syndrome (CdLS) is a rare multisystem genetic disorder caused primarily by mutations in the NIPBL gene (or less commonly HDAC8, RAD21, SMC1A, SMC3), which affect cohesin complex function during fetal…
AT that can help with Cornelia de Lange Syndrome
The assistive technology and equipment a plan for Cornelia de Lange Syndrome commonly includes are:
How the NDIS funds assistive technology
AT is funded from your Capital budget, and the process depends on cost and complexity:
Getting AT into your plan
To fund AT for Cornelia de Lange Syndrome, plan ahead: