Assistive Technology for Kabuki Syndrome
The assistive technology and equipment the NDIS funds for Kabuki Syndrome, how the AT process works, and how to get it into your plan.
Assistive technology (AT) — from simple aids to powered equipment — helps many people with Kabuki Syndrome do things more safely and independently. This guide explains the AT that can help, how the NDIS funds it, and how to get it into your plan.
Understanding Kabuki Syndrome and assistive technology
Kabuki Syndrome is a rare multisystem genetic disorder caused primarily by mutations in the KMT2D gene (formerly MLL4) in approximately 75% of cases, or the KDM6A gene in a smaller proportion. It is characterised by five…
AT that can help with Kabuki Syndrome
The assistive technology and equipment a plan for Kabuki Syndrome commonly includes are:
How the NDIS funds assistive technology
AT is funded from your Capital budget, and the process depends on cost and complexity:
Getting AT into your plan
To fund AT for Kabuki Syndrome, plan ahead: