Assistive Technology for Phelan-McDermid Syndrome

The assistive technology and equipment the NDIS funds for Phelan-McDermid Syndrome, how the AT process works, and how to get it into your plan.

Assistive technology (AT) — from simple aids to powered equipment — helps many people with Phelan-McDermid Syndrome do things more safely and independently. This guide explains the AT that can help, how the NDIS funds it, and how to get it into your plan.

Understanding Phelan-McDermid Syndrome and assistive technology

Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3…

AT that can help with Phelan-McDermid Syndrome

The assistive technology and equipment a plan for Phelan-McDermid Syndrome commonly includes are:

How the NDIS funds assistive technology

AT is funded from your Capital budget, and the process depends on cost and complexity:

Getting AT into your plan

To fund AT for Phelan-McDermid Syndrome, plan ahead:

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