Assistive Technology for Sotos Syndrome
The assistive technology and equipment the NDIS funds for Sotos Syndrome, how the AT process works, and how to get it into your plan.
Assistive technology (AT) — from simple aids to powered equipment — helps many people with Sotos Syndrome do things more safely and independently. This guide explains the AT that can help, how the NDIS funds it, and how to get it into your plan.
Understanding Sotos Syndrome and assistive technology
Sotos syndrome, sometimes called cerebral gigantism, is a rare genetic condition usually caused by changes in the NSD1 gene. It is characterised by rapid physical growth in early childhood, with affected children often…
AT that can help with Sotos Syndrome
The assistive technology and equipment a plan for Sotos Syndrome commonly includes are:
How the NDIS funds assistive technology
AT is funded from your Capital budget, and the process depends on cost and complexity:
Getting AT into your plan
To fund AT for Sotos Syndrome, plan ahead: