Day Programs & Community Participation for Bardet-Biedl Syndrome

How the NDIS funds day programs, community access and social participation for people with Bardet-Biedl Syndrome, and how to find the right one.

Getting out, staying connected and doing things you enjoy matters — and the NDIS funds it. For people with Bardet-Biedl Syndrome, day programs and community participation supports build skills, friendships and routine. This guide explains what's funded and how to find the right program.

Community participation and Bardet-Biedl Syndrome

Bardet-Biedl Syndrome (BBS) is a rare inherited condition that affects many parts of the body. It belongs to a group of disorders called ciliopathies, in which tiny cell structures called cilia don't work properly,…

What's funded

Depending on your goals, a plan for Bardet-Biedl Syndrome might fund:

Group vs one-to-one

Both have their place for Bardet-Biedl Syndrome:

Getting it into a plan for Bardet-Biedl Syndrome

Set goals around connection, community and independence, and describe the support you need to take part safely. The clearer the goal, the easier it is to fund the right community supports.

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