Day Programs & Community Participation for Epidermolysis Bullosa

How the NDIS funds day programs, community access and social participation for people with Epidermolysis Bullosa, and how to find the right one.

Getting out, staying connected and doing things you enjoy matters — and the NDIS funds it. For people with Epidermolysis Bullosa, day programs and community participation supports build skills, friendships and routine. This guide explains what's funded and how to find the right program.

Community participation and Epidermolysis Bullosa

Epidermolysis bullosa (EB) is a rare group of inherited connective tissue disorders characterised by extreme fragility of the skin and mucous membranes, resulting in blistering, wound formation and scarring in response…

What's funded

Depending on your goals, a plan for Epidermolysis Bullosa might fund:

Group vs one-to-one

Both have their place for Epidermolysis Bullosa:

Getting it into a plan for Epidermolysis Bullosa

Set goals around connection, community and independence, and describe the support you need to take part safely. The clearer the goal, the easier it is to fund the right community supports.

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