Day Programs & Community Participation for Kabuki Syndrome
How the NDIS funds day programs, community access and social participation for people with Kabuki Syndrome, and how to find the right one.
Getting out, staying connected and doing things you enjoy matters — and the NDIS funds it. For people with Kabuki Syndrome, day programs and community participation supports build skills, friendships and routine. This guide explains what's funded and how to find the right program.
Community participation and Kabuki Syndrome
Kabuki Syndrome is a rare multisystem genetic disorder caused primarily by mutations in the KMT2D gene (formerly MLL4) in approximately 75% of cases, or the KDM6A gene in a smaller proportion. It is characterised by five…
What's funded
Depending on your goals, a plan for Kabuki Syndrome might fund:
Group vs one-to-one
Both have their place for Kabuki Syndrome:
Getting it into a plan for Kabuki Syndrome
Set goals around connection, community and independence, and describe the support you need to take part safely. The clearer the goal, the easier it is to fund the right community supports.