Day Programs & Community Participation for Marfan Syndrome
How the NDIS funds day programs, community access and social participation for people with Marfan Syndrome, and how to find the right one.
Getting out, staying connected and doing things you enjoy matters — and the NDIS funds it. For people with Marfan Syndrome, day programs and community participation supports build skills, friendships and routine. This guide explains what's funded and how to find the right program.
Community participation and Marfan Syndrome
Marfan syndrome is an inherited disorder of the body's connective tissue — the material that supports and holds together the body's structures. It's caused by a change in the FBN1 gene, which affects a protein called…
What's funded
Depending on your goals, a plan for Marfan Syndrome might fund:
Group vs one-to-one
Both have their place for Marfan Syndrome:
Getting it into a plan for Marfan Syndrome
Set goals around connection, community and independence, and describe the support you need to take part safely. The clearer the goal, the easier it is to fund the right community supports.