Day Programs & Community Participation for Pitt-Hopkins Syndrome
How the NDIS funds day programs, community access and social participation for people with Pitt-Hopkins Syndrome, and how to find the right one.
Getting out, staying connected and doing things you enjoy matters — and the NDIS funds it. For people with Pitt-Hopkins Syndrome, day programs and community participation supports build skills, friendships and routine. This guide explains what's funded and how to find the right program.
Community participation and Pitt-Hopkins Syndrome
Pitt-Hopkins syndrome (PTHS) is a rare genetic condition that affects brain development. It causes developmental delay, moderate to severe intellectual disability, distinctive facial features and characteristic breathing…
What's funded
Depending on your goals, a plan for Pitt-Hopkins Syndrome might fund:
Group vs one-to-one
Both have their place for Pitt-Hopkins Syndrome:
Getting it into a plan for Pitt-Hopkins Syndrome
Set goals around connection, community and independence, and describe the support you need to take part safely. The clearer the goal, the easier it is to fund the right community supports.