Day Programs & Community Participation for Sotos Syndrome
How the NDIS funds day programs, community access and social participation for people with Sotos Syndrome, and how to find the right one.
Getting out, staying connected and doing things you enjoy matters — and the NDIS funds it. For people with Sotos Syndrome, day programs and community participation supports build skills, friendships and routine. This guide explains what's funded and how to find the right program.
Community participation and Sotos Syndrome
Sotos syndrome, sometimes called cerebral gigantism, is a rare genetic condition usually caused by changes in the NSD1 gene. It is characterised by rapid physical growth in early childhood, with affected children often…
What's funded
Depending on your goals, a plan for Sotos Syndrome might fund:
Group vs one-to-one
Both have their place for Sotos Syndrome:
Getting it into a plan for Sotos Syndrome
Set goals around connection, community and independence, and describe the support you need to take part safely. The clearer the goal, the easier it is to fund the right community supports.