NDIS Early Childhood & School Support for Wolf-Hirschhorn Syndrome

How the NDIS early childhood approach supports young children with Wolf-Hirschhorn Syndrome, and how supports work alongside school.

For young children with Wolf-Hirschhorn Syndrome, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.

Wolf-Hirschhorn Syndrome and the early childhood approach

Wolf-Hirschhorn syndrome (WHS) is a rare chromosomal microdeletion syndrome caused by deletion of part of the short arm of chromosome 4 (4p16.3 region). It occurs in approximately 1 in 50,000 births and affects females…

What early supports look like

Early intervention for Wolf-Hirschhorn Syndrome is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:

How supports work with school

As your child starts school, NDIS supports and the education system each play a part:

Getting the right early plan for Wolf-Hirschhorn Syndrome

Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…

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