NDIS Employment Support (SLES & DES) for Charcot-Marie-Tooth Disease
How the NDIS supports work and employment for people with Charcot-Marie-Tooth Disease — SLES, DES, supported and open employment.
Many people with Charcot-Marie-Tooth Disease want to work, and the right support makes it possible. Between the NDIS and the Disability Employment Services program, there are several pathways into a job. This guide explains the options — school leaver supports, DES, and supported or open employment — for people with Charcot-Marie-Tooth Disease.
Work and Charcot-Marie-Tooth Disease
Charcot-Marie-Tooth disease (CMT) is the most common inherited peripheral neuropathy, affecting approximately 1 in 2,500 people worldwide. It is named after the three physicians who first described it in 1886. CMT is…
The main employment pathways
For someone with Charcot-Marie-Tooth Disease, the options usually include:
How the NDIS funds work supports
NDIS employment supports sit in your Capacity Building budget (Finding and Keeping a Job), and some on-the-job help in Core. Key points:
Getting employment support into a plan for Charcot-Marie-Tooth Disease
Bring an employment goal and any assessments of your work capacity to planning. A support coordinator or a DES provider can help you map the pathway from where you are now to the job you want.