NDIS Employment Support (SLES & DES) for Noonan Syndrome
How the NDIS supports work and employment for people with Noonan Syndrome — SLES, DES, supported and open employment.
Many people with Noonan Syndrome want to work, and the right support makes it possible. Between the NDIS and the Disability Employment Services program, there are several pathways into a job. This guide explains the options — school leaver supports, DES, and supported or open employment — for people with Noonan Syndrome.
Work and Noonan Syndrome
Noonan syndrome is an autosomal dominant genetic condition caused by gain-of-function mutations in genes encoding components of the RAS/MAPK signalling pathway — most commonly PTPN11 (approximately 50% of cases),…
The main employment pathways
For someone with Noonan Syndrome, the options usually include:
How the NDIS funds work supports
NDIS employment supports sit in your Capacity Building budget (Finding and Keeping a Job), and some on-the-job help in Core. Key points:
Getting employment support into a plan for Noonan Syndrome
Bring an employment goal and any assessments of your work capacity to planning. A support coordinator or a DES provider can help you map the pathway from where you are now to the job you want.