NDIS Employment Support (SLES & DES) for Usher Syndrome

How the NDIS supports work and employment for people with Usher Syndrome — SLES, DES, supported and open employment.

Many people with Usher Syndrome want to work, and the right support makes it possible. Between the NDIS and the Disability Employment Services program, there are several pathways into a job. This guide explains the options — school leaver supports, DES, and supported or open employment — for people with Usher Syndrome.

Work and Usher Syndrome

Usher syndrome is the most common cause of combined deafblindness in the world, accounting for approximately 50% of all deafblind individuals. It is an autosomal recessive genetic condition characterised by sensorineural…

The main employment pathways

For someone with Usher Syndrome, the options usually include:

How the NDIS funds work supports

NDIS employment supports sit in your Capacity Building budget (Finding and Keeping a Job), and some on-the-job help in Core. Key points:

Getting employment support into a plan for Usher Syndrome

Bring an employment goal and any assessments of your work capacity to planning. A support coordinator or a DES provider can help you map the pathway from where you are now to the job you want.

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