NDIS Funding & Budget for Dravet Syndrome
How NDIS funding works for Dravet Syndrome: the three budget types, what a plan typically funds, and how to set goals that unlock the right supports.
An NDIS plan for Dravet Syndrome is built from your goals and assessed needs, not a fixed list. This guide explains the three budget types, what a plan for Dravet Syndrome typically funds, and how to ask for the right supports at your planning meeting.
Understanding Dravet Syndrome and your NDIS plan
Dravet syndrome is a rare, severe genetic epilepsy that usually begins in the first year of life, most often triggered by fever or temperature change. It is most commonly caused by a change in the SCN1A gene. The…
How NDIS budgets work
Every NDIS plan is divided into three budgets. Understanding them helps you plan for Dravet Syndrome:
What a plan for Dravet Syndrome typically funds
Mapped to those budgets, a plan for Dravet Syndrome often includes:
Setting goals that unlock funding
The NDIS funds supports that connect to your goals, so it's worth writing goals that reflect what Dravet Syndrome makes harder. Examples might include maintaining independence at home, staying connected to your…