NDIS Funding & Budget for Phelan-McDermid Syndrome
How NDIS funding works for Phelan-McDermid Syndrome: the three budget types, what a plan typically funds, and how to set goals that unlock the right suppor
An NDIS plan for Phelan-McDermid Syndrome is built from your goals and assessed needs, not a fixed list. This guide explains the three budget types, what a plan for Phelan-McDermid Syndrome typically funds, and how to ask for the right supports at your planning meeting.
Understanding Phelan-McDermid Syndrome and your NDIS plan
Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3…
How NDIS budgets work
Every NDIS plan is divided into three budgets. Understanding them helps you plan for Phelan-McDermid Syndrome:
What a plan for Phelan-McDermid Syndrome typically funds
Mapped to those budgets, a plan for Phelan-McDermid Syndrome often includes:
Setting goals that unlock funding
The NDIS funds supports that connect to your goals, so it's worth writing goals that reflect what Phelan-McDermid Syndrome makes harder. Examples might include maintaining independence at home, staying connected to your…