Therapy & Allied Health for Phelan-McDermid Syndrome
The allied health and therapy the NDIS funds for Phelan-McDermid Syndrome, how Capacity Building pays for it, and how to find the right therapists.
Therapy and allied health help many people with Phelan-McDermid Syndrome build skills, stay independent and take part in daily life. This guide covers which therapies tend to help, how the NDIS funds them, and how to find the right therapists.
Understanding Phelan-McDermid Syndrome and therapy
Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3…
Which therapies help with Phelan-McDermid Syndrome
The allied health supports a plan for Phelan-McDermid Syndrome commonly includes are:
How the NDIS funds therapy
Most therapy sits in your Capacity Building budget, under Improved Daily Living. A few things to know:
Making your therapy budget go further
A few ways to stretch therapy funding for Phelan-McDermid Syndrome: