Therapy & Allied Health for Sotos Syndrome
The allied health and therapy the NDIS funds for Sotos Syndrome, how Capacity Building pays for it, and how to find the right therapists.
Therapy and allied health help many people with Sotos Syndrome build skills, stay independent and take part in daily life. This guide covers which therapies tend to help, how the NDIS funds them, and how to find the right therapists.
Understanding Sotos Syndrome and therapy
Sotos syndrome, sometimes called cerebral gigantism, is a rare genetic condition usually caused by changes in the NSD1 gene. It is characterised by rapid physical growth in early childhood, with affected children often…
Which therapies help with Sotos Syndrome
The allied health supports a plan for Sotos Syndrome commonly includes are:
How the NDIS funds therapy
Most therapy sits in your Capacity Building budget, under Improved Daily Living. A few things to know:
Making your therapy budget go further
A few ways to stretch therapy funding for Sotos Syndrome: