Specialist Disability Accommodation (SDA) for CDKL5 Deficiency Disorder
Whether CDKL5 Deficiency Disorder may meet SDA eligibility, the design categories, and the evidence needed to get Specialist Disability Accommodation funde
Specialist Disability Accommodation (SDA) is purpose-built or modified housing for people with very high support needs. It's tightly targeted, but for some people with CDKL5 Deficiency Disorder whose functional impairment is extreme, it can be life-changing. This guide explains SDA eligibility, the design categories, and the evidence you'll need.
Could CDKL5 Deficiency Disorder meet SDA eligibility?
CDKL5 Deficiency Disorder (CDD) is a rare genetic condition caused by changes in the CDKL5 gene, which makes a protein essential for normal brain development. It is a form of developmental and epileptic encephalopathy,…
The four SDA design categories
If you're eligible, SDA is funded against a design category matched to your needs:
The evidence you'll need
SDA is evidence-heavy. A strong request for CDKL5 Deficiency Disorder usually includes:
SDA and SIL together
SDA pays for the specialist building; the day-to-day support in it is funded separately (usually through SIL). Many people with CDKL5 Deficiency Disorder who are eligible for SDA also have SIL — see our SIL guide for…