Specialist Disability Accommodation (SDA) for Phelan-McDermid Syndrome
Whether Phelan-McDermid Syndrome may meet SDA eligibility, the design categories, and the evidence needed to get Specialist Disability Accommodation funded
Specialist Disability Accommodation (SDA) is purpose-built or modified housing for people with very high support needs. It's tightly targeted, but for some people with Phelan-McDermid Syndrome whose functional impairment is extreme, it can be life-changing. This guide explains SDA eligibility, the design categories, and the evidence you'll need.
Could Phelan-McDermid Syndrome meet SDA eligibility?
Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3…
The four SDA design categories
If you're eligible, SDA is funded against a design category matched to your needs:
The evidence you'll need
SDA is evidence-heavy. A strong request for Phelan-McDermid Syndrome usually includes:
SDA and SIL together
SDA pays for the specialist building; the day-to-day support in it is funded separately (usually through SIL). Many people with Phelan-McDermid Syndrome who are eligible for SDA also have SIL — see our SIL guide for…