Seizure Management Plans & Emergency Medication (Midazolam) on the NDIS

Seizure management plan NDIS explainer: what the plan contains, how emergency midazolam (buccal/intranasal) works, who can give it, and when to call 000.

A seizure management plan is the single most important document in safe epilepsy support — it turns "they know about my epilepsy" into a clear, step-by-step response anyone supporting you can follow. This explainer sets out what belongs in the plan, how emergency medication like midazolam fits, who can give it, and how the plan connects to your NDIS supports.

What a seizure management plan is

What's in the plan

Emergency (rescue) medication: midazolam

Who can give emergency medication

When to call 000

How the plan connects to your NDIS supports

Keeping the plan current

Where this sits

Frequently asked questions

What is a seizure management plan?

It's a written document, usually prepared with your doctor or neurologist, describing your seizures, their triggers, what carers and workers should do during and after one, when to give emergency medication, and when to call 000. It turns general awareness of your epilepsy into a clear, step-by-step…

What emergency medication is used for seizures, and how is it given?

The common rescue medication is midazolam, given into the cheek (buccal) or up the nose (intranasal) rather than by injection. Your seizure management plan specifies the exact dose and the point at which it should be given — for example, when a seizure lasts beyond a set number of minutes.

Who is allowed to give emergency midazolam?

Someone trained and assessed as competent to administer it, following your seizure management plan. Because it's a high-intensity task, a support worker can give it only after proper training and competency sign-off, usually with nurse oversight. The plan must authorise it and set out exactly when…

When should someone call 000 during a seizure?

Your plan sets your specific triggers, but common ones include a seizure lasting longer than five minutes, one seizure following another without recovery, a first-ever seizure, injury, breathing difficulty, or a seizure in water. Emergency medication and calling 000 often go together, and the plan…

How does the plan connect to my NDIS supports?

The plan is what your workers follow, and it's key evidence for funding seizure-trained worker time, competency training and any monitoring equipment. Support workers are funded to follow it; the plan itself and your medication come from your medical team and the health system, not your NDIS plan.

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