Supported Independent Living (SIL) for Smith-Magenis Syndrome
When Supported Independent Living suits Smith-Magenis Syndrome, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with Smith-Magenis Syndrome who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits Smith-Magenis Syndrome, what it funds, and how to get it into a plan.
Is SIL right for Smith-Magenis Syndrome?
Smith-Magenis Syndrome (SMS) is a rare genetic disorder caused by a deletion or mutation on chromosome 17 (17p11.2) involving the RAI1 gene. It is characterised by intellectual disability (mild to moderate), distinctive…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for Smith-Magenis Syndrome
Start by getting a functional assessment that shows the level of daily support Smith-Magenis Syndrome requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect…