Supported Independent Living (SIL) for Spinal Muscular Atrophy
When Supported Independent Living suits Spinal Muscular Atrophy, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with Spinal Muscular Atrophy who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits Spinal Muscular Atrophy, what it funds, and how to get it into a plan.
Is SIL right for Spinal Muscular Atrophy?
Spinal muscular atrophy (SMA) is a hereditary neuromuscular disease caused by mutations in the SMN1 (survival motor neurone 1) gene on chromosome 5. Loss of SMN protein leads to progressive degeneration of the lower…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for Spinal Muscular Atrophy
Start by getting a functional assessment that shows the level of daily support Spinal Muscular Atrophy requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect…