Supported Independent Living (SIL) for Wolf-Hirschhorn Syndrome
When Supported Independent Living suits Wolf-Hirschhorn Syndrome, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with Wolf-Hirschhorn Syndrome who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits Wolf-Hirschhorn Syndrome, what it funds, and how to get it into a plan.
Is SIL right for Wolf-Hirschhorn Syndrome?
Wolf-Hirschhorn syndrome (WHS) is a rare chromosomal microdeletion syndrome caused by deletion of part of the short arm of chromosome 4 (4p16.3 region). It occurs in approximately 1 in 50,000 births and affects females…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for Wolf-Hirschhorn Syndrome
Start by getting a functional assessment that shows the level of daily support Wolf-Hirschhorn Syndrome requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect…