Finding & Managing Support Workers for Charcot-Marie-Tooth Disease
How support workers help with Charcot-Marie-Tooth Disease, how to find the right one on Novida, and how to manage them well under your NDIS plan.
Support workers provide the hands-on, everyday help that makes an NDIS plan real — personal care, getting out into the community, and building daily-living skills. This guide covers what they do for Charcot-Marie-Tooth Disease, how to find the right person, and how to manage them well.
What support workers do for Charcot-Marie-Tooth Disease
Charcot-Marie-Tooth disease (CMT) is the most common inherited peripheral neuropathy, affecting approximately 1 in 2,500 people worldwide. It is named after the three physicians who first described it in 1886. CMT is…
Finding the right support worker
The right match matters as much as the right skills. On Novida you can:
Managing your support workers
However you engage them, a few things keep support working well:
Self-managing, plan-managing or agency
How you manage your plan affects which workers you can use: self-managed and plan-managed participants can engage independent workers as well as agencies, while NDIA-managed plans use registered providers. See "NDIS…