Finding & Managing Support Workers for Marfan Syndrome
How support workers help with Marfan Syndrome, how to find the right one on Novida, and how to manage them well under your NDIS plan.
Support workers provide the hands-on, everyday help that makes an NDIS plan real — personal care, getting out into the community, and building daily-living skills. This guide covers what they do for Marfan Syndrome, how to find the right person, and how to manage them well.
What support workers do for Marfan Syndrome
Marfan syndrome is an inherited disorder of the body's connective tissue — the material that supports and holds together the body's structures. It's caused by a change in the FBN1 gene, which affects a protein called…
Finding the right support worker
The right match matters as much as the right skills. On Novida you can:
Managing your support workers
However you engage them, a few things keep support working well:
Self-managing, plan-managing or agency
How you manage your plan affects which workers you can use: self-managed and plan-managed participants can engage independent workers as well as agencies, while NDIA-managed plans use registered providers. See "NDIS…