Finding & Managing Support Workers for Tuberous Sclerosis Complex
How support workers help with Tuberous Sclerosis Complex, how to find the right one on Novida, and how to manage them well under your NDIS plan.
Support workers provide the hands-on, everyday help that makes an NDIS plan real — personal care, getting out into the community, and building daily-living skills. This guide covers what they do for Tuberous Sclerosis Complex, how to find the right person, and how to manage them well.
What support workers do for Tuberous Sclerosis Complex
Tuberous Sclerosis Complex (TSC) is a rare genetic disorder caused by mutations in the TSC1 (hamartin) or TSC2 (tuberin) genes, which normally act as tumour suppressors. TSC causes benign tumours (hamartomas) to grow in…
Finding the right support worker
The right match matters as much as the right skills. On Novida you can:
Managing your support workers
However you engage them, a few things keep support working well:
Self-managing, plan-managing or agency
How you manage your plan affects which workers you can use: self-managed and plan-managed participants can engage independent workers as well as agencies, while NDIA-managed plans use registered providers. See "NDIS…