22q11.2 Deletion Syndrome (DiGeorge) — NDIS Support
Yes — 22q11.2 Deletion Syndrome (DiGeorge) can qualify for NDIS support. Children may access support through early childhood intervention, based on developmental need rather than a fixed diagnosis. Funding covers reasonable and necessary supports across daily living, therapy, social participation and capacity building.
22q11.2 Deletion Syndrome — also known as DiGeorge syndrome or velocardiofacial syndrome — is caused by a missing piece of chromosome 22. It is the most common chromosomal microdeletion, affecting roughly 1 in 4,000 births. Because the deleted region influences many parts of the body, the syndrome…
22q11.2 & the NDIS FAQs
- Is 22q11.2 Deletion Syndrome eligible for the NDIS?
- 22q11.2 isn't listed as automatically eligible, and because its impact varies widely, access is based on how much the condition permanently reduces functional capacity. Children with developmental delay, intellectual disability or significant communication needs are often eligible, and under 7s can use the early…
- What are the main health issues to watch for?
- 22q11.2 is a multi-system condition. Common areas to monitor include congenital heart differences, palate and feeding problems, immune-system weakness with frequent infections, low calcium and other hormonal issues, and kidney differences. Because so many systems can be involved, children are usually followed by a…
- Will my child have an intellectual disability?
- Not always. Learning difficulties and developmental delay are common, but they range from mild to more significant, and some people have intelligence in the typical range. Each child is different, so individual developmental and educational assessments — rather than the diagnosis alone — guide the support a child needs…
- Why is mental-health support important in 22q11.2?
- 22q11.2 carries a higher lifetime risk of mental-health conditions, including anxiety and ADHD in childhood and, in up to around one in four adults, psychotic illness such as schizophrenia. Early awareness, monitoring and access to psychology and psychiatric support are important so that difficulties are recognised and…
- What supports help most for children with 22q11.2?
- Speech pathology is often a priority because of palate-related speech and feeding needs, alongside early childhood intervention, occupational therapy and learning support. As children grow, mental-health support, help with independence and life skills, and support coordination to manage the many specialists involved…
22q11.2 & the NDIS — practical guides
- Applying for the NDIS with 22q11.2 Deletion Syndrome (DiGeorge)
- Assistive Technology for 22q11.2 Deletion Syndrome (DiGeorge)
- Day Programs & Community Participation for 22q11.2 Deletion Syndrome (DiGeorge)
- NDIS Early Childhood & School Support for 22q11.2 Deletion Syndrome (DiGeorge)
- NDIS Employment Support (SLES & DES) for 22q11.2 Deletion Syndrome (DiGeorge)
- NDIS Funding & Budget for 22q11.2 Deletion Syndrome (DiGeorge)
- Therapy & Allied Health for 22q11.2 Deletion Syndrome (DiGeorge)
- Finding & Managing Support Workers for 22q11.2 Deletion Syndrome (DiGeorge)
Related conditions
- Achondroplasia (Dwarfism) and the NDIS
- Arthrogryposis and the NDIS
- Bardet-Biedl Syndrome and the NDIS
- CDKL5 Deficiency Disorder and the NDIS
- Cerebral Visual Impairment (CVI) and the NDIS
- Chiari Malformation and the NDIS
- Chronic Kidney Disease (End-Stage Renal) and the NDIS
- Coffin-Siris Syndrome and the NDIS
- Complex Regional Pain Syndrome (CRPS) and the NDIS
- Crohn's Disease & Inflammatory Bowel Disease and the NDIS
Sources
Reviewed by the Novida editorial team · last reviewed 2026-07-12. General information only — not medical advice.