Osteogenesis Imperfecta — NDIS Support

Yes — Osteogenesis Imperfecta can qualify for NDIS support. OI is on the NDIA’s List B — permanence is recognised, and you evidence the functional impact on daily life. Funding covers reasonable and necessary supports across daily living, therapy, social participation and capacity building.

Osteogenesis imperfecta (OI), often called brittle bone disease, is a group of genetic conditions in which bones break easily, often from little or no obvious trauma. It is caused by problems making type I collagen, the protein that gives bones their strength. As well as fragile bones, OI can affect…

OI & the NDIS FAQs

Is osteogenesis imperfecta eligible for the NDIS?
OI is a permanent genetic condition, so it can meet the NDIS disability requirements where it causes substantial functional impact. It is assessed on evidence rather than being automatically listed, so a specialist diagnosis confirming the type and permanence, along with functional assessments of mobility, self-care…
Does the NDIS fund treatment for my bones?
No. Medical treatments such as bone-strengthening medication, fracture care and surgery are funded through the health system, not the NDIS. The NDIS funds disability supports that build and maintain independence — physiotherapy, occupational therapy, support workers, assistive technology and home and vehicle…
What evidence should I include in an application?
Include a specialist report confirming the diagnosis, type and permanence, and functional assessments from an occupational therapist and physiotherapist. Document how OI affects specific daily tasks — mobility, transfers, personal care, work and getting around your community — and the equipment and support you need to…
Can the NDIS fund home and vehicle modifications?
Yes. Where an occupational therapist assessment shows they are reasonable and necessary, the NDIS can fund home modifications such as accessible bathrooms and ramps, and vehicle modifications to support safe transport. For people with OI, an accessible environment is central to reducing fracture risk and maintaining…
Do children with OI access support differently?
Children under seven can access the NDIS early childhood approach, which focuses on developmental and functional needs. Early physiotherapy, safe-handling advice for families, and appropriate equipment help protect bones while supporting movement and participation as a child grows. Support then continues to be reviewed…

OI & the NDIS — practical guides

Related conditions

Sources

Reviewed by the Novida editorial team · last reviewed 2026-07-12. General information only — not medical advice.