Day Programs & Community Participation for Joubert Syndrome
How the NDIS funds day programs, community access and social participation for people with Joubert Syndrome, and how to find the right one.
Getting out, staying connected and doing things you enjoy matters — and the NDIS funds it. For people with Joubert Syndrome, day programs and community participation supports build skills, friendships and routine. This guide explains what's funded and how to find the right program.
Community participation and Joubert Syndrome
Joubert syndrome (JS) is a rare autosomal recessive (and occasionally X-linked) condition characterised by a distinctive structural brain abnormality known as the "molar tooth sign" (MTS) on MRI — caused by hypoplasia or…
What's funded
Depending on your goals, a plan for Joubert Syndrome might fund:
Group vs one-to-one
Both have their place for Joubert Syndrome:
Getting it into a plan for Joubert Syndrome
Set goals around connection, community and independence, and describe the support you need to take part safely. The clearer the goal, the easier it is to fund the right community supports.