Day Programs & Community Participation for Phelan-McDermid Syndrome
How the NDIS funds day programs, community access and social participation for people with Phelan-McDermid Syndrome, and how to find the right one.
Getting out, staying connected and doing things you enjoy matters — and the NDIS funds it. For people with Phelan-McDermid Syndrome, day programs and community participation supports build skills, friendships and routine. This guide explains what's funded and how to find the right program.
Community participation and Phelan-McDermid Syndrome
Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3…
What's funded
Depending on your goals, a plan for Phelan-McDermid Syndrome might fund:
Group vs one-to-one
Both have their place for Phelan-McDermid Syndrome:
Getting it into a plan for Phelan-McDermid Syndrome
Set goals around connection, community and independence, and describe the support you need to take part safely. The clearer the goal, the easier it is to fund the right community supports.