NDIS Early Childhood & School Support for Dravet Syndrome
How the NDIS early childhood approach supports young children with Dravet Syndrome, and how supports work alongside school.
For young children with Dravet Syndrome, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.
Dravet Syndrome and the early childhood approach
Dravet syndrome is a rare, severe genetic epilepsy that usually begins in the first year of life, most often triggered by fever or temperature change. It is most commonly caused by a change in the SCN1A gene. The…
What early supports look like
Early intervention for Dravet Syndrome is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:
How supports work with school
As your child starts school, NDIS supports and the education system each play a part:
Getting the right early plan for Dravet Syndrome
Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…