NDIS Early Childhood & School Support for Duchenne Muscular Dystrophy

How the NDIS early childhood approach supports young children with Duchenne Muscular Dystrophy, and how supports work alongside school.

For young children with Duchenne Muscular Dystrophy, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.

Duchenne Muscular Dystrophy and the early childhood approach

Duchenne muscular dystrophy (DMD) is the most common and severe form of muscular dystrophy. It is an X-linked recessive inherited neuromuscular disorder caused by mutations in the DMD gene on the X chromosome that result…

What early supports look like

Early intervention for Duchenne Muscular Dystrophy is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:

How supports work with school

As your child starts school, NDIS supports and the education system each play a part:

Getting the right early plan for Duchenne Muscular Dystrophy

Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…

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