NDIS Early Childhood & School Support for Kabuki Syndrome
How the NDIS early childhood approach supports young children with Kabuki Syndrome, and how supports work alongside school.
For young children with Kabuki Syndrome, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.
Kabuki Syndrome and the early childhood approach
Kabuki Syndrome is a rare multisystem genetic disorder caused primarily by mutations in the KMT2D gene (formerly MLL4) in approximately 75% of cases, or the KDM6A gene in a smaller proportion. It is characterised by five…
What early supports look like
Early intervention for Kabuki Syndrome is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:
How supports work with school
As your child starts school, NDIS supports and the education system each play a part:
Getting the right early plan for Kabuki Syndrome
Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…