NDIS Early Childhood & School Support for Noonan Syndrome

How the NDIS early childhood approach supports young children with Noonan Syndrome, and how supports work alongside school.

For young children with Noonan Syndrome, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.

Noonan Syndrome and the early childhood approach

Noonan syndrome is an autosomal dominant genetic condition caused by gain-of-function mutations in genes encoding components of the RAS/MAPK signalling pathway — most commonly PTPN11 (approximately 50% of cases),…

What early supports look like

Early intervention for Noonan Syndrome is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:

How supports work with school

As your child starts school, NDIS supports and the education system each play a part:

Getting the right early plan for Noonan Syndrome

Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…

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