NDIS Early Childhood & School Support for Pitt-Hopkins Syndrome
How the NDIS early childhood approach supports young children with Pitt-Hopkins Syndrome, and how supports work alongside school.
For young children with Pitt-Hopkins Syndrome, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.
Pitt-Hopkins Syndrome and the early childhood approach
Pitt-Hopkins syndrome (PTHS) is a rare genetic condition that affects brain development. It causes developmental delay, moderate to severe intellectual disability, distinctive facial features and characteristic breathing…
What early supports look like
Early intervention for Pitt-Hopkins Syndrome is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:
How supports work with school
As your child starts school, NDIS supports and the education system each play a part:
Getting the right early plan for Pitt-Hopkins Syndrome
Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…