NDIS Early Childhood & School Support for Phelan-McDermid Syndrome
How the NDIS early childhood approach supports young children with Phelan-McDermid Syndrome, and how supports work alongside school.
For young children with Phelan-McDermid Syndrome, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.
Phelan-McDermid Syndrome and the early childhood approach
Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3…
What early supports look like
Early intervention for Phelan-McDermid Syndrome is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:
How supports work with school
As your child starts school, NDIS supports and the education system each play a part:
Getting the right early plan for Phelan-McDermid Syndrome
Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…