NDIS Early Childhood & School Support for Usher Syndrome

How the NDIS early childhood approach supports young children with Usher Syndrome, and how supports work alongside school.

For young children with Usher Syndrome, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.

Usher Syndrome and the early childhood approach

Usher syndrome is the most common cause of combined deafblindness in the world, accounting for approximately 50% of all deafblind individuals. It is an autosomal recessive genetic condition characterised by sensorineural…

What early supports look like

Early intervention for Usher Syndrome is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:

How supports work with school

As your child starts school, NDIS supports and the education system each play a part:

Getting the right early plan for Usher Syndrome

Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…

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