NDIS Employment Support (SLES & DES) for Bardet-Biedl Syndrome
How the NDIS supports work and employment for people with Bardet-Biedl Syndrome — SLES, DES, supported and open employment.
Many people with Bardet-Biedl Syndrome want to work, and the right support makes it possible. Between the NDIS and the Disability Employment Services program, there are several pathways into a job. This guide explains the options — school leaver supports, DES, and supported or open employment — for people with Bardet-Biedl Syndrome.
Work and Bardet-Biedl Syndrome
Bardet-Biedl Syndrome (BBS) is a rare inherited condition that affects many parts of the body. It belongs to a group of disorders called ciliopathies, in which tiny cell structures called cilia don't work properly,…
The main employment pathways
For someone with Bardet-Biedl Syndrome, the options usually include:
How the NDIS funds work supports
NDIS employment supports sit in your Capacity Building budget (Finding and Keeping a Job), and some on-the-job help in Core. Key points:
Getting employment support into a plan for Bardet-Biedl Syndrome
Bring an employment goal and any assessments of your work capacity to planning. A support coordinator or a DES provider can help you map the pathway from where you are now to the job you want.