NDIS Employment Support (SLES & DES) for Epidermolysis Bullosa
How the NDIS supports work and employment for people with Epidermolysis Bullosa — SLES, DES, supported and open employment.
Many people with Epidermolysis Bullosa want to work, and the right support makes it possible. Between the NDIS and the Disability Employment Services program, there are several pathways into a job. This guide explains the options — school leaver supports, DES, and supported or open employment — for people with Epidermolysis Bullosa.
Work and Epidermolysis Bullosa
Epidermolysis bullosa (EB) is a rare group of inherited connective tissue disorders characterised by extreme fragility of the skin and mucous membranes, resulting in blistering, wound formation and scarring in response…
The main employment pathways
For someone with Epidermolysis Bullosa, the options usually include:
How the NDIS funds work supports
NDIS employment supports sit in your Capacity Building budget (Finding and Keeping a Job), and some on-the-job help in Core. Key points:
Getting employment support into a plan for Epidermolysis Bullosa
Bring an employment goal and any assessments of your work capacity to planning. A support coordinator or a DES provider can help you map the pathway from where you are now to the job you want.