NDIS Employment Support (SLES & DES) for Huntington's Disease
How the NDIS supports work and employment for people with Huntington's Disease — SLES, DES, supported and open employment.
Many people with Huntington's Disease want to work, and the right support makes it possible. Between the NDIS and the Disability Employment Services program, there are several pathways into a job. This guide explains the options — school leaver supports, DES, and supported or open employment — for people with Huntington's Disease.
Work and Huntington's Disease
Huntington's Disease (HD) is an autosomal dominant neurodegenerative condition caused by an expanded CAG repeat in the HTT gene on chromosome 4. Each child of an affected parent has a 50% chance of inheriting the…
The main employment pathways
For someone with Huntington's Disease, the options usually include:
How the NDIS funds work supports
NDIS employment supports sit in your Capacity Building budget (Finding and Keeping a Job), and some on-the-job help in Core. Key points:
Getting employment support into a plan for Huntington's Disease
Bring an employment goal and any assessments of your work capacity to planning. A support coordinator or a DES provider can help you map the pathway from where you are now to the job you want.