NDIS Employment Support (SLES & DES) for Kabuki Syndrome
How the NDIS supports work and employment for people with Kabuki Syndrome — SLES, DES, supported and open employment.
Many people with Kabuki Syndrome want to work, and the right support makes it possible. Between the NDIS and the Disability Employment Services program, there are several pathways into a job. This guide explains the options — school leaver supports, DES, and supported or open employment — for people with Kabuki Syndrome.
Work and Kabuki Syndrome
Kabuki Syndrome is a rare multisystem genetic disorder caused primarily by mutations in the KMT2D gene (formerly MLL4) in approximately 75% of cases, or the KDM6A gene in a smaller proportion. It is characterised by five…
The main employment pathways
For someone with Kabuki Syndrome, the options usually include:
How the NDIS funds work supports
NDIS employment supports sit in your Capacity Building budget (Finding and Keeping a Job), and some on-the-job help in Core. Key points:
Getting employment support into a plan for Kabuki Syndrome
Bring an employment goal and any assessments of your work capacity to planning. A support coordinator or a DES provider can help you map the pathway from where you are now to the job you want.