NDIS Employment Support (SLES & DES) for Smith-Magenis Syndrome
How the NDIS supports work and employment for people with Smith-Magenis Syndrome — SLES, DES, supported and open employment.
Many people with Smith-Magenis Syndrome want to work, and the right support makes it possible. Between the NDIS and the Disability Employment Services program, there are several pathways into a job. This guide explains the options — school leaver supports, DES, and supported or open employment — for people with Smith-Magenis Syndrome.
Work and Smith-Magenis Syndrome
Smith-Magenis Syndrome (SMS) is a rare genetic disorder caused by a deletion or mutation on chromosome 17 (17p11.2) involving the RAI1 gene. It is characterised by intellectual disability (mild to moderate), distinctive…
The main employment pathways
For someone with Smith-Magenis Syndrome, the options usually include:
How the NDIS funds work supports
NDIS employment supports sit in your Capacity Building budget (Finding and Keeping a Job), and some on-the-job help in Core. Key points:
Getting employment support into a plan for Smith-Magenis Syndrome
Bring an employment goal and any assessments of your work capacity to planning. A support coordinator or a DES provider can help you map the pathway from where you are now to the job you want.