Supported Independent Living (SIL) for CDKL5 Deficiency Disorder
When Supported Independent Living suits CDKL5 Deficiency Disorder, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with CDKL5 Deficiency Disorder who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits CDKL5 Deficiency Disorder, what it funds, and how to get it into a plan.
Is SIL right for CDKL5 Deficiency Disorder?
CDKL5 Deficiency Disorder (CDD) is a rare genetic condition caused by changes in the CDKL5 gene, which makes a protein essential for normal brain development. It is a form of developmental and epileptic encephalopathy,…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for CDKL5 Deficiency Disorder
Start by getting a functional assessment that shows the level of daily support CDKL5 Deficiency Disorder requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect…