Supported Independent Living (SIL) for Cri du Chat Syndrome
When Supported Independent Living suits Cri du Chat Syndrome, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with Cri du Chat Syndrome who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits Cri du Chat Syndrome, what it funds, and how to get it into a plan.
Is SIL right for Cri du Chat Syndrome?
Cri du Chat Syndrome (CdCS) — French for "cry of the cat" — is a rare genetic condition caused by a deletion on the short arm of chromosome 5 (5p15). It is named for the distinctive high-pitched cry of affected infants,…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for Cri du Chat Syndrome
Start by getting a functional assessment that shows the level of daily support Cri du Chat Syndrome requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect with…